This month marks 6 years since Josie was diagnosed with Wilms tumors. Crazy how fast time flies! Josie had her leg lengthing surgery June 5th, 2015 and has now had a full years recovery. So glad we went through with it because you'd never know she's been through anything watching her run and play along with the everyone else! She measures 4ft 1in and weighed 60 lbs at her check up this month!!!She remains in remission and still has scans every three months.  She has just got to where she ask a lot of questions about herself and tonight I showed her this blog and her Facebook page and she said it almost made her cry from how much people loves her! She's so full of life and loves to do anything and everything. Shes got everyone still wrapped around her finger still and there isn't anything she can't do when she sets her mind to it.

Almost 4 years of Remission!!

As I look back it's amazing how strong my now 4 year old is and has been! Feb. 11 will mark her last chemo  treatment 4 years ago! Wow how time has flown by so quickly. She will be 5 this year and is now 48lbs and 3ft 9in tall!!!

December 8th Update

        Today was our 10th treatment of chemo. The Patholigist said the tumors they removed were still growing so they were debating on adding a 3rd drug to her chemo but instead they are saving it incase she needs it later since you can only have a certain amount of that drug in a lifetime. She will do a total of 19 treatments as of right now. Josie has recovered well from surgery and is back to her happy little self! She is crawl-scooting around and pulling up on everything now. Genetics doc says she will be able to walk but in her own time and once she figures out how to balance the height difference. Today she measured 30in on her right side and 27 3/4in on left and She is 22 lbs. She is saying dada and bubba very well now and is babbling new sounds everyday.Thank you all for your prayers and support. Will try to update agaion soon. God bless you all.

                                                                                              Jessica McKee

surgery update

Surgery went well today to remove tumors.Josie isnt feeling very good still and hasnt really woke up yet. we will be here for at least 5 days and should get all results in 2 or 3 days. Its hard to see her not smiling for once.Please continue to pray for her as she still has many ruff days ahead of her.

Update

Josie had her 6th chemo treatment and MRI on friday. The results showed that one had gotten smaller on the left kidney and the other about the same. And the right side also remained about the same. We will find out what her next step will be this coming friday. Please continue your prayers for her as she fights this battle.

Make a Donation

Please click the link below to make a donation toward Josie and the Beckwith-Weidemann Syndrome fund.

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Josie's Story

Josie LeAnn McKee was born March 1, 2010, one month premature. Unexpectedly she had Beckwith-Weidemann Syndrome, Omphalocele and intestine problems which required her to have surgery just hours after birth. Josie spent her first month of life in Harris Methodist Hospital. Just six short months later, September 17, 2010, she was diagnosed with Wilms Turmors. She started chemotherapy September 24, 2010 and will contiune with the chemo every Friday for six weeks.

Josie is a very strong little girl with a smile that will melt your heart. She is fighting a battle that grown men wouldn't dare attempt, all with a smile on her face. Please continue to pray for Josie and pass along the word to friends and family. She has a long road ahead of her, but with your help she will win this battle. Josie and her family are very greatful for everyone's support and prayers.

With love!